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Living with Spina Bifida (SBA): How Complex Rehab Technology Can Promote a Brighter Future for Your Child

  • Writer: Rehab Medical
    Rehab Medical
  • Sep 18
  • 3 min read
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Have you recently been told your child has Spina Bifida? If so, you’re probably going through a whirlwind of emotions and have lots of questions. What does this mean for my child? What kind of person can my child become, given the challenges they face? Will my child struggle with mobility and independence?


For new and expecting parents these are all valid concerns. Spina Bifida is a widespread birth defect that affects the development of the spinal cord. But thanks to advancements in medical care many children go on to live bright, fulfilling lives.


While every child’s experience with Spina Bifida is different, most struggle with limited muscle control and motor functions, resulting in slightly or severely impacted mobility functions. The key to minimizing your child’s mobility challenges is understanding how custom-advanced assistive devices, such as Complex Rehab Technology (CRT), can promote independence and empower your child to thrive.



Spina Bifida at a Glance:

  • Spina Bifida is one of the most common birth defects, affecting 1 in every 2,875 babies born in the U.S. per year

  • Today more than 166,000 people in the U.S. are living with Spina Bifida

  • Spina Bifida often appears in early stages of pregnancy, usually within the first month

  • Research shows that low folic acid intake, diabetes, overheating, and certain medications can increase the risk





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Understanding Spina Bifida


Spina Bifida is a condition that can only be developed during pregnancy. It’s a defect caused by the neural tube, a temporary structure that later becomes the brain and spinal cord, not fully developing or closing properly. Depending on size and location of the neural tube defect, your child’s Spina Bifida condition can vary. However, there are three most diagnosed types of Spina Bifida.

 

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Using Complex Rehab Technology (CRT) to Improve the Quality of Life for Children with Spina Bifida Cystica


Of the three most common types of SBA, Spina Bifida Cystica (SBC) is the only type to cause neurological defects that can lead to mobility issues. Typically, those with SBC experience numbness in the groin, legs, feet, or even paralysis. As the condition progresses, individuals may require an assistive device to live an independent lifestyle.


That’s where CRT becomes a key factor. Advancements in CRT offer users customized seating, positioning, and electronics to manage muscle weakness, limited motor functions, and relieve pressure caused by SBC.


Here are few ways CRT Combats SBC Effects:


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CRT’s custom features include tailored seating options and memory cushions to maintain comfortability, balance, and movements.

Features like custom seating positions allow for quick adjustments so they can easily gain control over their evolving daily activities.

CRT offers a reclining feature to help distribute weight, maintain posture, reduce the risk of pressure injuries, and support healthy growth.


 




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Real-Life Story of Hope


Parents who’ve entrusted CRT’s capabilities found their children were able to grow up and pursue their dreams, whether it’s playing professional sports, obtaining a higher education degree, or choosing a career they’re passionate about. Learn how the parents of Sydni Hershberger, a young woman with Spina Bifida, relied on CRT’s customized seating technology to provide her with the comfort and independence needed to attend college and study special education.




No matter what stage of Spina Bifida your child is experiencing, a CRT solution can offer a variety of options to accommodate their evolving needs.


Explore how CRT can fit into your child’s health care plan by contacting a Rehab Medical mobility specialist today. We’re here to help guide you and your child down the path to improved health and overall better quality of life.


For additional resources and support for you and your family, visit the Spina Bifida Association.

 



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